Wednesday, February 17, 2010

Website: Patientslikeme

I was listening to this podcast yesterday, and thought that there were numerous topics that would be of interest to SIS. The podcast describes a social networking-based website ( that has proved useful for managing certain diseases. Among the notions that were interesting to me were:
  • Thinking about privacy as a goal
  • Problems of selecting variables that are useful for recording
  • For which diseases are sites like this useful

1 comment:

Ellen Detlefsen said...

there is additional commentary on this project, as well as a link to video from the TED conference at

This is a *hot* topic in consumer informatics circles these days....